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What is Pediatric Palliative Care?

"Palliative Care is a holistic way of looking at care for children who have life-limiting or life-threating illnesses that addresses the physical, social, emotional, and spiritual needs of the patient and the family from diagnosis through bereavement." – Sue Bace, Hand in Hand coordinator

Rich and complex, pediatric Palliative Care is multidimensional support and care for patient and family during a life threatening or life limiting illness.

The World Health Organization defines pediatric palliative care as “the active total care of the child's body, mind and spirit,” which also involves “giving support to the family.”

    • Palliative care begins when illness is diagnosed and continues regardless of whether a child receives treatment directed at the disease.
    • Health providers must evaluate and alleviate a child's physical, psychological, and social distress.
    • Effective palliative care requires a broad multidisciplinary approach that includes the family and makes use of available community resources.

Source: World Health Organization, 2013

For more information and testimonies about pediatric palliative care, click here.